What is WRONG with You?

(cc) Douglas CooteyAh, the quintessential question of your life. "What is WRONG with you?" You've spent your life hearing it from one knucklehead or another, usually knuckleheads with authority. There's just something about you that doesn't sync with the people around you. You think differently. You work differently. You are different. And in a world where conformity is not only a job skill but a way of life, you, my friend, are too different. And that's bad. At least that's what they tell me anyway.

My favorite part of that question is when you try to answer it. Any attempt to explain AD/HD, Depression, Insomnia, or Chronic Motor Tic Disorder (the disorders I have) is often met with contempt as if I'm trying to make excuses for being a loser. "Everyone can be absentminded," they say in a patient and sagacious tone. They also say things like "Anybody can feel down from time to time. So you have a sleep problem; take a pill," and my favorite, "There's no such thing as ADD." I don't get much flak about the tic disorder. People just back away uncomfortably or smile at me awkwardly during those times. It really is quite funny. Their smile has a rigor mortis feel to it as they nod their head in understanding, but the eyes tell all. Pain squints at the edges and they look like they're warring with the eyebrows to keep from arching too noticeably.

The fact is that our disabilities are inconvenient for these people. They can't be bothered to care about you. They have work to do and deadlines to meet. Sometimes even allowing you to have disabilities somehow makes them unimportant. Yes, some of them will get strangely jealous of your "excuse" and try to level the playing field by diminishing your problems.

I suppose we shouldn't be surprised by the ubiquitous rejections of these invisible disorders. Everyone really does experience depression, absentmindedness, and poor sleep at one point in their lives. Heck, they've even had a muscle twitch on them involuntarily from time to time. Most people cannot relate, however, with the magnitude at which these problems can manifest themselves in me. It is simply beyond their experience.

If you've spent weeks with your sleep schedule upside down despite all your efforts to the contrary, if you've ever lost a job due to AD/HD, if you've lost weeks of your life curled up in a black ball wishing you were dead due to Depression, or if you've missed out on favorite activities because your body violently spasms about your home instead, then you know I'm not exaggerating. Some people's problems are truly worse than others.

For example, I know plenty of people who are worse off than I am. My youngest daughter has mild Cerebral Palsy and Epilepsy. My mother has Post Polio Syndrome. My wife's check account has Chronic Depression. I'm doing well comparatively. I try to keep things in perspective. And still, just because people are born without sight somewhere in the world doesn't mean I don't have any problems.

Unfortunately, when asked "What is wrong with you?" the situation cannot be fixed readily with a hasty explanation. The person asking such a question is really saying, "Why are you such a pain in my butt?" There's no helping them. They don't want to understand. They just want results. I've left many a job because I knew my boss was about to go postal on my job status. I used to tell myself I left with my pride intact, except that we know that really wasn't true. Over time I learned how to avoid those situations and extend my employability. It took fifteen years, but now I can work for at least four days without sending my employer into fits of apoplexy. Perhaps by the time I'm 55 I'll be able to work a whole week at the same job. I'm giddy just thinking about it.

In all seriousness, you don't have to work or be where you are not understood. Hanging onto jobs or friends who lose patience with you will only damage your self-esteem in the end and cause you to spiral more out of control due to resultant anxiety, depression, etc. It is important instead to seek out people who are understanding. This might mean making some hard decisions. I once terminated friendship with friends from High School simply because they took my AD/HD personally. The more absentminded I was the more offended they were. I walked away from that situation and I recommend you do the same. Now I am surrounded by friends who not only understand me but find my freakish quirks charming and even entertaining. Ah, to grow up to be a clown. My mother must be so proud.

Darn, I'm not being serious again.


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Comments

nihon said…
Hopefully I'm one of those friends mentioned at the very end. :-)
D.R. Cootey said…
That all depends if you found me amusing at Harmon's the other day. :)

To those who don't get to interact with me on a daily basis: I generally poke fun of myself. Humor is how I often deal with these issues. So when my right knee began its journey to the ceiling in the middle of the grocery store last Saturday I started making wisecracks. It's all very tragic, but when you can laugh about it things don't seem so bad. It's better than being humiliated, I suppose.
nihon said…
That wasn't a very wise crack with the cane, though. Ouch!
D.R. Cootey said…
Yes, that was a miscalculated move. But no harm done. Well, long lasting harm at any rate.
Claire said…
Good to have you back. Your wisdom has been missed (not to mention your humor). I'm afraid I often take my husband's illness personally. It's hard not to when you are so close to the disease. Just today in the car on the way home through the blizzard (20 inches of fresh snow due by tomorrow night- yippee!), my son asked "Mom, why does Dad have to be so tired all the time? Why can't he ever play?" Those types of questions either make me really sad or really mad, depending on my hormonal cycle! It isn't fair that my kids don't have a real dad. He's home all day, but I still have to put my daughter in day care because he can't manage a two year old's energy all day.

Oh well, I know there's nothing I can do about it, so we move on.

Good to see you up and online again.
D.R. Cootey said…
No, it's not fair. Life stinks, frankly.

I had plans. Big ones. I don't enjoy having my wife cut my steak for me. I don't enjoy my daughters looking at me with sympathetic faces whenever I vocal tic suddenly. I want to cut my own steak, danggit! I want to not shout "Heebah!" at the top of my lungs during dinner. I want to work instead of my wife. I want to provide for my family. I don't want to have to relearn drawing all the time. I don't want to need a cane. I want to do so much more but cannot. I imagine your husband is just as frustrated.

The only thing I have total control over is my attitude. I choose whether I let my disabilities get me down or not. I choose whether I quit or keep fighting. You can't make your husband's disabilities go away, Claire, but you can help him want to keep fighting. Good luck with that. It's hard to keep chipper, I have to admit. I'm not always good at it, but the alternative is to sink into despair. How much fun is that? ;)
Audi said…
glad to so your back!!!!! you were missed.
D.R. Cootey said…
Thanks, Audi. I don't know if I can be regular again, but I can at least be monthly or even biweekly. Wish me luck! :)
Whatafreak said…
I gotta say, many of the things you talk about related to ADD (or ADHD) have hit very close to home for me, and I am glad that you have come back.

The friends bit that you talked about at the end has been true for me as well. My best friend in the world is the only one of all my friends that has ADD along with me, and we get along famously. I am avoiding some of my friends on MSN Messenger right now because I know they will be mad when I get distracted and forget to answer them back until 4 hours later, haha!
Sylvana said…
"And still, just because people are born without sight somewhere in the world doesn't mean I don't have any problems."

YES!!!!!!!!!!!
D.R. Cootey said…
@Whatafreak Thanks for the kind words. Get an autobot to hold conversations with your MSN Messie friends. :)

@Sylvana: That statement resonates for me. I'm glad that somebody agrees with me. ;)
I remember once in a fit of frustration yelling at my son "What is wrong with you?", I immediately felt like crap for saying it. The hardest thing for this ADHD parent was finally realizing that he is not doing anything to me, against me, etc... he has a condition and he can't help the things he does. I never ask him what is wrong with him, in fact I only ever did it once, but I get plenty of stares in stores and in public that say "What is wrong with your kid?". If only they knew, if only they had the joy of raising an ADHD child... and he is a joy.
D.R. Cootey said…
Bekah ~ Thanks for your comments. You've given me a great idea for a future column. "What Do You Like About Your AD/HD Kid?"
thefleet said…
Arggh! I don't enjoy having other people cut up my food for me either!
But, on the bright side, I guess it's better than me stabbing someone.

I "SSSSSHHHHHHHH" instead of "heebah". Loud. Sometimes the looks I get in public are amusing enough to help me forget why I am getting those looks. :D

I'm so glad that I found your blog. I actually found this when I was trying to decide what to do about my tic disorder. I was a total mess when I found this. I was depressed, frustrated, angry, embarrassed and on medication that was making me sick as a dog. It was nice to find someone who has gone through the same things I was dealing with. It was even better that you had such a great attitude. Keep it up!

Much Peace, Love, and Prosperity.
D.R. Cootey said…
Avant-garde89 ~ Keep your chin up. It's the only way. I know. I know. Sometimes it's hard to do. Sometimes I am overwhelmed with shame no matter how much my family loves me. I'm a proud man and I don't enjoy having arms and legs flailing about and I especially loathe the vocal tics. Sometimes I feel powerfully embarrassed. But I pick myself back up every time because to give up is not an option. To wallow in self-pity cannot be allowed to happen. I simply won't allow my tic disorder to beat me down. My outlook on life is the only thing I have absolute control over and I've decided to be optimistic.

I can't say I'm a Pollyanna, however. I'm far from it, but I am no Eeyore!

Thanks for commenting. I've been enjoying what you've had to say.

~Douglas

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