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Showing posts with the label Dysautonomia

PEM: Thinking Tactically

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(These AI images make me laugh. Yes, I know the calendar is messed up. Allow me my silly moments.) I’ve decided to think dramatically about my obstacles in my first attempt to blog about my new condition with a sense of humor. Honestly, there hasn’t been much to laugh at. For example, I got distracted playing Chess on Duolingo the other day and gave myself Post Exertional Malaise (PEM). First, I noticed the headache, then I noticed that I was panting, and then I realized that I was dizzy. It was just chess! But I lost track of time, got caught up in it, and overtaxed my brain. Stamina spent. Crash incoming. An entire day wasted. It’s hard to laugh about things like that. I had big plans to implement. Instead, I watched TV—until that gave me a headache, too. Every day I have lists, but I rarely make it to the end of them because of the drain cognitive, physical, and even emotional events have on my stamina levels. Chronic fatigue is complicated. That’s whe...

The Car Wreck of My Life Has a Name

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Since the pandemic, I have discovered something harder to deal with than Tourettes. It challenges my efforts to be upbeat and optimistic, and has given me very little to laugh about. I manage my ADHD & Depression just fine—or should I say I deal with them just fine. They represent road bumps that cause me to slow down, but then I get back up to speed. My Tourettes acts more like an IED that blows up my schedule. It takes a bit more effort and time to recover from, but I always get moving forward again. Post Viral Dysautonomia, as I’ve been recently diagnosed with, has been more like a head-on collision with demolition charges for the past four years, taking out both the car and the roads. It leaves me exhausted, susceptible to illness, and with oxygen saturation that routinely drops below 88%. Recently, I had a setback in my efforts to overcome dysautonomia. It was just back surgery. I had a cyst removed. Nothing drastic. It was day surgery. I laughed and chatted wi...

April Snow Brings May Slow, But I Keep On Fighting

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The biggest challenge in my life right now is Long COVID. The post exertion malaise leaves me depleted with no extra energy for blogging. All that energy is directed towards my Daddy Duty (I have an adult, learning disabled, autistic child at home) and my current work in progress. Yes, I am writing, and it’s filled with attitude and humor, but I’m not writing here. Let’s change that. I’ll start with recent Facebook posts, elaborate on them, and then start charting my progress—perhaps even with a bit of cheek. April 4, 2023: Nice weather we’re having! 🌱🌿πŸ₯€ (To be honest, snow in April means I have to continue staying indoors. The reprieve from illness that I typically get with warmer, sunnier weather is delayed with every day that Spring doesn’t return from Arizona or wherever the heck she gets off to during Winter.)   April 12, 2023: Just working on getting healthy again. Not succeeding very well. Current location: Bed Current mood: Annoyed . My Post CO...

Depression: The Highway to Success Has an Awful Lot of Detours

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I’ll write a bit vaguely today because I want to touch upon some things that are family matters and how they impact me. Recently, I have noticed longtime readers of my blog have leapfrogged over me while my life has become stagnant. I caught myself beginning to feel bitter about it, so instead of letting that bitterness settle into depression, I will share some things that I have learned instead. My life took a detour a few years back, if eleven can be called of few. It was as if I was forced to take an exit and found myself on the service road bumping along besides the highway, falling behind all the other traffic. I could see where I wanted to go, but I just couldn’t get there as fast. I called that detour “divorce”, and it took me a few years to get back up onto the highway. I finished two books and blogged professionally during that productive time. Managing my depression while optimistically making big goals helped me to move forward. The next deto...

Ten Ways to Be Happy with Post-COVID Syndrome (Even If You're Miserable)

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Let’s celebrate my one year anniversary since getting COVID–19! πŸŽ‰ I know people who felt that COVID was a pernicious plot by politicians to put down the populace. I know others who believed that nobody would ever get the virus if they were vaccinated, and anybody not getting vaccinated was trying to kill them. Because of this polarization, I have a hard time talking to people about my experience with Long COVID, or Post-COVID Syndrome as I prefer to call it. Although I have found sympathetic ears out there, they aren’t the norm. The anti-vaccine folks look down on me for masking up and getting vaccinated, or they shun me for admitting that COVID–19 was far worse than a mild cold. If I acknowledge the dangers of COVID–19 in anyway, I’m a compliant sheep to them. On the other side, the pro-vaccine cheer team pretentiously lecture me on the importance of being vaccinated when I tell them I got COVID. I suppose their reasoning is that I couldn...